As I am sitting here relaxing from a long hectic teething day with Logan, he and Daddy are asleep in the bedroom. This past week, since I've been out of school, I have been cruising around my baby message board a lot more than usual. I belong to babycenter.com and have found tremendous support and encouragement (and fun!)from the ladies there.
A couple of little girls have been brought to my attention, and they could use all the prayers and well wishes that we can give them.
The first one is Hannah. She was born in July 2007 and is very very sick. This is taken from Hannah's CarePage:
This page was created for Hannah Eileen Salcher (a.k.a. Panda). Hannah was diagnosed with MPS Type I on June 30, 2008- one week before her first birthday. Hannah and her mom came to Chicago on May 30, 2008 for an appointment with a specialist at Children's Hospital to be evaluated for sagittal craniosynostosis (premature closure of the sagittal suture of the skull). She was diagnosed with sagittal craniosynostosis at the beginning of June, but the doctors thought there was something more. After lots of testing MPS was diagnosed. It's possible that Hannah will need skull reconstruction but we are taking one thing at a time right now. Through Hannah's care page we hope to keep family members updated on her condition and network with others who are affected by MPS.
MPS is an acronym for a rare genetic disorder called mucopolysaccharidosis. Basically, Hannah's body is lacking an enzyme necessary to break down molecules called glycosaminoglycans - long chains of sugar carbohydrates in each of our cells that help build bone, cartilage, tendons, corneas, skin and connective tissue. Over time, these glycosaminoglycans collect in the cells, blood and connective tissues. The result is permanent, progressive cellular damage which affects appearance, physical abilities, organ and system functioning and in most cases, mental development.
Her carepage link is: http://www.carepages.com/carepages/HannahEileenSalcher/patient
A lot of moms on BabyCenter are praying for Hannah to pull through! Please join us!
The next little girl is Kayleigh. She was born very prematurely and has been struggling for her life since her birth on June 23 2008. She is only 3 weeks older than Logan, yet so tiny and fragile. Her family felt for sure last week that they were losing her, but she is showing how much of a fighter she is and hanging on!! It definitely shows the power of prayer.
http://kayleighannefreeman.blogspot.com/
Please keep these two beautiful little girls close to your hearts in the coming weeks. I'm glad they will both see Christmas. Let's get them home!!!
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